Understanding the Impact of Alzheimer’s on Families and Society
On this World Alzheimer’s Day, it is crucial to have conversations that alleviate the burden on thousands of families caring for loved ones with dementia. These discussions should aim to reduce stigma, recognize caregivers, demand support programs, and advocate for early diagnoses.
“Seeing your beloved person gradually lose their essence, transforming into someone different before your eyes,” is a poignant description of living with Alzheimer’s. Today, as we mark World Alzheimer’s Day, it is essential to remember that in Mexico, 1.3 million individuals over 60 years old are living with dementia, and by 2050, this number is projected to rise to over 3.5 million.
The Financial and Emotional Toll of Alzheimer’s
The Changing the Narrative: Alzheimer’s Disease in Mexico report, developed by The Economist Impact in collaboration with Eli Lilly, sheds light on this silent crisis. It reveals that 9 out of 10 cases of these demencies remain undiagnosed, leaving thousands of families without the opportunity to intervene early and support their loved ones.
Each diagnosis is more than a statistic; it represents an empty office chair, a halted life project, and a hug no longer recognized. The delay in diagnosis results in more pain, burden, and isolation for millions of families.
The Manifestation of Stigma
Recognizing when we perpetuate stigma around this condition is the first step. There are numerous harmful stereotypes and assumptions that we often fail to see in our own circles.
- Negative Language: Using derogatory terms or language that undermines or fails to empower individuals living with Alzheimer’s.
- Lack of Awareness: Understanding that dementia is not a normal part of aging, but rather an avoidable and preventable condition. It also highlights that those already affected can improve their quality of life.
- Social Isolation: People with dementia are often excluded by friends or family, leading to negative relationship changes that could have been avoided through open dialogue and seeking options.
- Loss of Self-esteem (Self-stigma): Individuals with Alzheimer’s may internalize negative beliefs about the disease, leading to feelings of shame, inferiority, or being a burden, resulting in complete isolation.
- Stigma by Association: Caregivers and family members also suffer the negative consequences of stigma associated with the disease, leading to their isolation.
- Ignoring Voices of Individuals with Dementia: Believing their opinions are invalid or not taken seriously, preventing them from participating in conversations about the disease.
A Challenge We Can Overcome with Timely Action
Today, more than ever, we need conversations that alleviate this burden. As a society, we must become more aware and find ways to reduce or eliminate stigma, recognize unpaid caregivers, demand support programs, and advocate for early diagnoses. These conversations should transform empathy into action.
Remembering is not just an act of memory; it’s also an act of responsibility. We remember today while we still can what others cannot, defending the right to dignity, autonomy, and companionship. Remember that Alzheimer’s should not be an inevitable condemnation but a challenge we can overcome with timely action.
This day also reminds us that a nation’s memory is built from the sum of all its stories. Let’s not forget those who can no longer remember. We still have time.
Key Questions and Answers
- What is the significance of World Alzheimer’s Day? It serves as a reminder to address the growing burden of Alzheimer’s disease, reduce stigma, and advocate for early diagnosis and support.
- How does stigma affect those with Alzheimer’s? Stigma can lead to social isolation, loss of self-esteem, and the internalization of negative beliefs about the disease.
- What are the consequences of delayed diagnosis? Delayed diagnoses result in more pain, burden, and isolation for families, as well as missed opportunities for early intervention.
- What can be done to combat stigma and support those affected by Alzheimer’s? Increased awareness, recognition of caregivers, demand for support programs, and advocacy for early diagnosis can help transform empathy into action.
